När det nyfödda barnet behöver neonatal intensivvård - föräldrars erfarenheter under vårdtiden och av en familjecentrerad intervention

Författare
Marie Åberg Petersson
Titel
När det nyfödda barnet behöver neonatal intensivvård - föräldrars erfarenheter under vårdtiden och av en familjecentrerad intervention
Utgivningsår
2024
Rapportnummer
Linnaeus University Dissertations No 543/2024
Stad
Växjö
Utgivare
linnaeus university press
Universitet
Linnéuniversitetet
Sidor
103
Url
ISBN: 978-91-8082-205-3
Nyckelord
Neonatal intensive care, Parents' experiences, Parents’ mental health, Bonding, Family well-being, Family functioning, Family systems nursing, Family health conversations
Sammanfattning

Background: Having an infant requiring care in a Neonatal Intensive Care Unit (NICU) is challenging for parents, often the beginning of a journey of stress and worry for parents. Such situations could cause difficulties in problem solving and communication within the family and result in decreased family functioning.
Aim: The overall aim of the thesis was to investigate parents' experiences when their children have needed NICU in the newborn period, and to investigate parents' experiences and effects of a family-centred intervention.
Method: Data was collected through interviews with parents of infants requiring NICU care (I) and six months after the intervention with Family Health Conversations (IV), analysed using thematic analysis (I) and qualitative content analysis (IV). Questionnaire data was collected in conjunction with inclusion (n=147) (II, III), and five (n=113) and eight (n=92) months after inclusion (III). The questionnaire included measures to assess mental health symptoms, bonding, family wellbeing, and family functioning. Quantitative data was analysed with descriptive and inferential statistics (II, III).
Results: The results of study I were presented as two themes: interactions within the family, and interactions between parents and staff. Interpersonal interactions could both facilitate and hinder in the sense of becoming a parent and a family. In study II nearly 40% of the parents reported anxiety symptoms. Mothers reported more mental health issues than non-birthing parents. Depression was associated with bonding difficulties and family wellbeing. In the longitudinally study (III) the intervention trended toward positive effects on mental health, family well-being, and family functioning. However, the estimated effects were not statistically significant. Regardless of the intervention, mental health symptoms decreased over time, whereas family well-being and functioning remained stable. Parents experienced the Family Health Conversations (IV) as an opportunity to co-create a comprehensive picture of what had happened after their child was born.

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